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Because I knew him

October 26, 2016Anne 14 Comments

Mike left us at 3:04 am on Monday, October 24th 2016. He spent the last week of his life reaching out to friends, family, and people that he loved. He specifically asked to see several people, wanting to make sure… Continue Reading →

Uncategorized being a caregiver, Bile Duct Cancer, cancer caregiver, cancer caregivers, cancer treatments, chemo for cholangiocarcinoma, death and dying, death process, immunotherapy clinical trials, keytruda

A hero comes along

October 18, 2016Anne 6 Comments

Mike made the decision to stop going upstairs on Wednesday at night. It was getting too difficult to get up and down even with my help, and we started sleeping downstairs full time. Mike in his hospital bed, and me… Continue Reading →

Uncategorized bile duct cancer clinical trial, bile duct cancer treatments, Cholangiocarcinoma, hospice care for bile duct cancer

The day the Volcano erupted

October 15, 2015Anne 4 Comments

Mike had the feeding tube removed yesterday-yay! I caution you before you read the rest of this that it isn’t pretty. In fact, if you have never seen a horror movie on tv this post may prepare you for that.… Continue Reading →

Being a Caregiver, Cholangiocarconoma, G-J Tube, The Hated Cancer, Uncategorized feeding tube, feeding tube removal, j-g tube removal

When Shrinkage is a good thing!

October 13, 2015Anne 7 Comments

We just got home from our treatment 13 appointment at Ohio State.Every two months Mike has to have a CT Scan to make sure the treatment is still working,in order to stay in the clinical trial. We were feeling pretty… Continue Reading →

Being a Caregiver, Cholangiocarconoma, Clinical Trial, G-J Tube, Lynch Syndrome, The Hated Cancer, Uncategorized feeding tube side effects, keytruda, keytruda 3475, Lynch Syndrome

Treatment 8 of Keytruda Drug July31,2015

August 1, 2015Anne 2 Comments

Yesterday was treatment 8 of the drug Keytruda. We were amazed by the efficiency of the whole treatment process. It is the first treatment Mike has had in this clinical process that went from A-B-C with little to no delay!… Continue Reading →

Uncategorized Bile Duct Cancer, cholangiocharcinoma, clinical trials for cholangiocarconoma, mk-3475, pembromilizab

Day 4 after Treatment

April 5, 2015Anne 2 Comments

Mike was exhausted on Friday. He literally slept all day. I have read that this is a common side effect from the MK-3475. He also has a rash that is coming up on his body,which makes it hard to sleep.… Continue Reading →

Uncategorized Bile Duct Cancer, clinical trials for cancer, ketruda side effects, keytruda 3475, keytruda rash, mk-3475

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